Malwina is 3 years old and suffers from a serious genetic disease – Rett syndrome. This disease progresses very quickly in the early stages of the child’s life.

Rett syndrome causes the child to stop talking, walking and communicating. The immune system weakens and organ failure may began. Debilitating epilepsy and brain inflammation are common. All this leads to profound disability and even death…

Rett syndrome was an incurable disease. Recently hope for complete recovery of sick children appeared. This is a gene therapy performed in the USA. Its cost is estimated at approximately $3,000,000…

We spent all our savings on the drug, which slows down the progression of the disease as much as possible at the moment. We still need to continue this therapy, which costs about $550,000 a year. When Malwina turns four, she will be eligible for gene therapy cure. We only hope Malwina will survive long enough…